| Author | Costa, Maria Tereza Fonseca da | |
| Author | Gomes, Maria Auxiliadora de Sousa Mendes | |
| Author | Pinto, Márcia | |
| Access date | 2012-12-17T16:50:37Z | |
| Available date | 2012-12-17T16:50:37Z | |
| Document date | 2011 | |
| Citation | COSTA, Maria Tereza Fonseca da Costa; GOMES, Maria Auxiliadora; PINTO, Márcia. Dependência crônica de ventilação pulmonar mecânica na assistência pediátrica: um debate necessário para o SUS. Ciência & Saúde Coletiva, Rio de Janeiro, v. 16, n. 10, p. 4147-4169, 2011. | |
| ISSN | 1413-8123 | |
| URI | https://www.arca.fiocruz.br/handle/icict/6015 | |
| Abstract in Portuguese | Pessoas com dependência prolongada de ventilação pulmonar mecânica necessitam de cuidados permanentes e de equipamentos, que podem alongar muito a permanência hospitalar, determinando uma dificuldade de acesso para pacientes com agravos agudos, assim como transtornos pessoais com limitação da qualidade de vida de seus familiares ou cuidadores, devido aos longos períodos de internação. Esta revisão crítica de publicações sobre dependência de ventilação pulmonar mecânica em crianças e adolescentes objetivou disponibilizar informações organizadas de modo sistemático, a fim de subsidiar o debate sobre o tema, considerando que as mudanças de perfil epidemiológico e o crescente acesso tecnológico determinam necessidades como leitos de terapia intensiva e complexa assistência domiciliar para pacientes crônicos, ainda com limites de oferta e regulação no sistema público de saúde brasileiro. | pt_BR |
| Language | por | pt_BR |
| Publisher | ABRASCO - Associação Brasileira de Saúde Coletiva | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Office of Technology Assessment. Assessing the Efficacy
and Safety of Medical Technologies [monografia].
Washington, D.C: Government Printing Office;
1978. [acessado 2010 jun 03]. Disponível em: http:/
/govinfo.library.unt.edu/ota/ota_5/DAta/1978/7805 | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Brasil. Portaria nº 2510 de 19 de Dezembro de 2005.
Institui Comissão para Elaboração da política de
Gestão Tecnológica no âmbito do SUS. Diário Oficial
da União 2005; 19 dez. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Schramm JM, Oliveira AF, Leite IC, Valente JG,
Gadelha AJ, Margareth CP, Campos MR. Transição
epidemiológica e o estudo de carga de doença no
Brasil. Cien Saude Colet 2004; 9(4):897-908. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Instituto Nacional de Câncer (INCA). Coordenação
de Prevenção e Vigilância de Câncer. Câncer da
criança e adolescente no Brasil: dados dos registros
de base populacional e de mortalidade. Rio de Janeiro:
INCA; 2008. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Wise PH. The future pediatrician: the challenge of
chronic illness. J Pediatric 2007; 151(Supl. 5):S6-S10. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Feudtner C, Hays RM, Haynes G, Geyer JR, Neff
JM, Koepsell TD. Deaths attributed to pediatrics
complex chronic conditions: national trends and
implications for supportive care services. Pediatrics
2001; 107(6):E99. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Van Dyck PC, Kogan MD, McPherson MG, Weissman
GR, Newacheck PW. Prevalence and characteristics
of children with special health care needs.
Arch Pediatr Adolesc Med 2004; 158(9):884-890. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Office of Technology Assessment . Technology-Dependent
Children: hospital v. Home Care: a technical
memorandum [monografia]. Washington. D.C:
Government Printing Office; 1987. [acessado 2009
dez 22]. Disponível em: http://govinfo.library.
unt.edu/ota/Ota-3/data/1987/8728.pdf | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Palfrey JS, Haynie M, Porter S, Fenton T, Coperman-
Vincent P, Shaw D, Johnson B, Bierle T, Walker
DK. Prevalence of medical technology assistance
among children in assachusettsand in 1987 and 1990.
Public Health Rep 1994; 109(2):226-233. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Jardine E, O’Toole M, Paton JY, Wallis C. Current
status of long term ventilation of children in the
United Kingdom: questionnaire survey. BMJ 1999;
318(7179):295-299. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Fauroux B, Boffa C, Desguerre I, Estournet B, Trang
H. Long-term noninvasive mechanical ventilation
for children at home: a national survey. Pediatr
Pulmonol 2003; 35(2):119-125. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Barbosa AP, Cunha AJLA, Carvalho ERM, Portela
AF, Andrade MF, Barbosa MCM. Terapia intensiva
neonatal e pediátrica no Rio de Janeiro: distribuição
de leitos e análise de equidade. AMB Rev Assoc
Med Bras 2002; 48(4):303-311. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Souza DC, Troster EJ, Carvalho WB, Shin SH, Cordeiro
AMG. Disponibilidade de unidades de terapia
intensiva pediátrica e neonatal no município
de São Paulo. J Pediatr (Rio J) 2004; 80(6):453-460. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Fraser J, Mok Q, Tasker R. Survey of occupancy of
paediatric intensive care units by children who are
dependent on ventilators. BMJ. 1997; 315(7104):347-
348. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Brasil. Portaria n.º 2.529 de 19 de Outubro de 2006.
Institui a Internação Domiciliar no âmbito do SUS.
Diário Oficial da União 2006; 20 out. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Pilmer SL | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Traiber C, Piva JP, Fritssher CC, Garcia PC, Lago
PM, Trotta EA, Ricachinevsky CP, Bueno FU, Baecker
V, Lisboa BD. Profile and consequences of children
requiring prolonged mechanical ventilation
in three brazilian pediatric intensive care units.
Pediatr Crit Care Med 2009; 10(3):375-380. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Goldberg AI, Faure EA, Vaughn CJ, Snarski R, Seleny
FL. Home care for life-supported persons: an
approach to program development. J Pediatr 1984;
104(5):785-795. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Frates RC Jr, Splaingard ML, Smith EO, Harrison
GM. Outcome of home mechanical ventilation in
children. J Pediatr 1985; 106(5): 850-856. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Schreiner MS, Donar ME, Kettrick RG. Pediatric
home mechanical ventilation. Pediatr Clin North
Am 1987; 34(1):47-60. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Schreiner MS, Downes JJ, Kettrick RG, Ise C, Voit
R. Chronic respiratory failure in infants with prolonged
ventilator dependency. JAMA 1987; 258(23):
3398-3404. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Hazlett DE. A study of pediatric home ventilator
management: medical, psychosocial and financial
aspects. J Pediatr Nurs 1989; 4(4):284-294. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Gilgoff IS, Kahlstrom E, MacLaughlin E, Keens TG.
Long term ventilator support in spinal muscular
atrophy. J Pediatr 1989; 115(6):904-909. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Gillis J, James Tibbals, McEnier J, Heavens J,
Hutchins P, Kilhan HA, Henning R. Ventilator dependent
children. Med J Aust 1989; 150(1):10-14. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Fields Al, Coble DH, Pollack MM, Kaufman J.
Outcome of home care for technology dependent
children: success of an independent, community
based case management model. Pediatr Pulmonol
1991; 11(4):310-317. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Marcus CL, Jansen MT, Poulsen MK, Keens SE,
Nield TA, Lipsker LE, Keens TG. Medical and psychosocial
outcome of children with congenital central
hypoventilation syndrome. J Pediatr 1991;
119(6):888-895. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | DeWitt PK, Jansen MT, Ward SL, Keens TG. Obstacles
to discharge of ventilator-assisted children from
the hospital to home. Chest 1993; 103(5):1560-1565. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Canlas-Yamsuan M, Sanchez I, Kesselman M, Chernick
V. Morbidity and mortality patterns of ventilator-
dependent children in a home care program.
Clin Pediatr (Phila) 1993; 32(12):706-713. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Baraldi E, Carra S, Vencatto F, Filippone M, Trevisanuto
D, Milanesi O, Pinello M, Zanardo V, Zacchello
F. Home oxygen therapy in infants with bronchopulmonary
dysplasia: a prospective study. Eur J
Pediatr 1997; 156(11):878-882. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Ambrosio IU, Woo MS, Jansen MT, Keens TG. Safety
of hospitalized ventilator dependent children
outside of the intensive care. Pediatrics 1998; 101(2):
257-259. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Resener TD, Martinez FE, Reiter K, Nicolai T. Assistência
ventilatória domiciliar em crianças: descrição
de um programa. J Pediatr 2001; 77(2):84-88. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Mocelin HT, Fisher GB, Ranzi LC, Rosa RD, Philomena
MR. Oxigenioterapia domiciliary em crianças:
relato de sete anos de experiência. J Bras Pneumol
2001; 27(3):148-152. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | O’Brien JE, Dumas HM, Haley SM, O’Neil ME,
Renn M, Bartolacci TE, Kharasch V.. Clinical findings
and resource use of infants and toddlers dependent
on oxygen and ventilators. Clin Pediatr
(Phila) 2002; 41(3):155-162. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Gilgoff RL, Gilgoff IS. Long-term follow-up of home
mechanical ventilation in young children with spinal
cord injury and neuromuscular conditions. J
Pediatr 2003; 142(5):476-480. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Bertrand P, Fehlmann E, Lizama M, Holmgren N,
Silva M, Sanchez I. Home ventilatory assistance in
Chilean children: 12 years’ experience. Arch Bronconeumol
2006; 42(4):165-170. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Ottonello G, Ferrari I, Pirroddi IM, Diana MC,
Villa G, Nahum L, Tuo P, Moscatelli A, Silvestri G.
Home mechanical ventilation in children: retrospective
survey of a pediatric population. Pediatr
Int 2007; 49(6):801-805. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Oktem S, Ersu R, Uyan ZS, Cakir E, Karakoc F,
Karadag B, Kiyan G, Dagli E. Home ventilation for
children with chronic respiratory failure in Istanbul.
Respiration 2008; 76(1):76-81. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Robinson RO. Ventilator dependency in the United
Kingdom. Arch Dis Child 1990; 65(11):1235-1236. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Gowans M, Keenan HT, Bratton SL. The population
prevalence of children receiving invasive home
ventilation in Utah. Pediatr Pulmonol 2007; 42(3):
231-236. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Taylor JH. Children who require long term: staff
education and training. Intensive Crit Care Nurs
2004; 20(2):93-102. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Teal DK, Cox TJ, Hertzog JH. Hospital discharge of
respiratory technology dependent children: role a
dedicated respiratoy care discharge coordinator.
Respir Care 2006; 51(7):744-749. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Teal DK, Hertzog JH. Home discharge of technology
dependent children: evaluation of a respiratory
therapist driven family education program. Respir
Care 2007; 52(2):171-176. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Noyes J, Hartmann H, Samuels M, Southall D. Experience
and views of parents who care for ventilator
dependent children. J Clin Nurs 1999; 8(4):440-
450. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Noyes J. Enabling young ventilator dependent people
to express their views and experiences of their
care en hospital. J Clin Nurs 2000; 31(5):1206-1215. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Noyes J. Barriers that delay children and young
people who are dependent on mechanical ventilators
from being discharged from hospital. J Clin
Nurs 2002; 11(1):2-11. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Carnevale FA, Alexander E, Davis M, Rennick J, Troini
R. Daily living with distress and enrichment: the
moral experience of families with ventilator-assisted
children at home. Pediatrics 2006; 117(1):e48-60. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Noyes J. Health and quality of life of ventilator-dependent
children. J Adv Nurs 2006; 56(4):392-403. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Noyes J. Comparasition of ventilator dependent
child reports of heath related quality of life with
parents reports and normative populations. J Adv
Nurs 2007; 58(1):1-10. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Drucker LP. Rede de suporte tecnológico à criança
dependente de tecnologia egressa de um hospital de
saúde pública. Cien Saude Colet 2007; 12(5):1285-
1284. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Sarvey SI. Living with a machine: the experience of
the child who is ventilator dependent. Issues Ment
Health Nurs 2008; 29(2):179-196. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Wang K W, Barnard A. Caregivers’ experiences at
home with a ventilator-dependent child. Qual Health
Res 2008; 18(4):501-508. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Whitford KM. Health care needs of ventilator dependent
children. Pediatr Nurs 1988; 14(3):216-219. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Capen CL, Dedlow ER. Discharging Ventilator Dependent
Children: a continuing challenge. J Pediatr
Nurs 1998; 13(3):175-184. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Donar ME. Community care: pediatric home mechanical
ventilation. Holist Nurs Pract 1988; 2(2):68-
80. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | American Thoracic Society. Medical Section of
American Lung Association. Home mechanical ventilation
of pediatric patients. Am Rev Respir Dis
1990; 141(1)258-259. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Panitch HB, Downes JJ, Kennedy JS, Kolb SM, Parra
MM, Peacock J, Thompson MC. Guidelines for
home care of children with chronic respiratory insufficiency.
Pediatr Pulmonol 1996; 21(1):52-56. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Jardine E, Wallis C. Core Guidelines for the child
on long term assisted ventilation in the United Kingdom.
Thorax 1998; 53:762-767. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Miller VL, Rice JC, DeVoe M, Fos PJ. An anlysis of
program and family costs of case managed care for
technology dependent infants with bronchopulmonary
dysplasia. J Pediatr Nurs 1998; 13(4):244-251. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Noyes J. Resource use and service costs for ventilator-
dependent children and yong people in the UK.
Health and Social Care in the Community 2006;
14(6):508-522. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Fauroux B, Sardet A, Foret D. Home treatment for
chronic respiratory failure in children: a prospective
study. Eur Respir J 1995; 8(12):2062-2066. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Dhillon JS, Frewen TC, Singh NC, Speechley KN.
Chronic mechanical ventilation dependent children
in Canada. Paediatr Child Health 1996; 1(2):111-116. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Kamm M, Burger R, Rimensberger P, Knoblauch
A, Hammer J. Survey of children supported by long
term mechanical ventilation in Switzerland. Swiss
Med Wkly 2001; 131(19-20):261-266. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | While AE, Cockett AM, Lewis S. Children and young
people requiring home assisted ventilation in the
South of England: incidence, receipt of care support
and components of the care package. Children
& Society 2003; 18(3):207-217. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Lago PM, Devictor D, Piva JP, Bergounioux J. Endof-
life in children: the Brazilian and the international
perspectives. J Pediatr 2007; 83(Supl. 2):109-116. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Barbosa AP. Terapia intensiva Neonatal e pediátrica
no Brasil: o ideal, o real e o possível. J pediatr
2004; 80(6):437-438. | pt_BR |
| xmlui.metadata.dc.relation.isbasedon | Brasil. Portaria n.º 1531 de 04 de Setembro de 2001.
Institui, no âmbito do Sistema Único de Saúde, o
Programa de Assistência Ventilatória Não Invasiva
a Pacientes Portadores de Distrofia Muscular Progressiva.
Diário Oficial da União 2001; 4 set. | pt_BR |
| Rights | open access | |
| Subject in Portuguese | Ventilação Mecânica | pt_BR |
| Subject in Portuguese | Tecnologia Médica | pt_BR |
| Subject in Portuguese | Dependência de Tecnologia | pt_BR |
| Subject in Portuguese | Ventilação Mecânica Crônica | pt_BR |
| Subject in Portuguese | Assistência Pediátrica | pt_BR |
| Title | Dependência crônica de ventilação pulmonar mecânica na assistência pediátrica: um debate necessário para o SUS | pt_BR |
| Alternative title | Chronic dependence on mechanical pulmonary ventilation in pediatric care: a necessary debate for Brazil's Unified Health System | |
| Type | Article | pt_BR |
| DOI | 10.1590/S1413-81232011001100020 | |
| Abstract | People with prolonged dependence on mechanical ventilation require permanent care and the use of equipment that can result in longer term hospital internment. This can lead to difficulty of access for patients with acute injuries, as well as personal difficulties and stress with reduced quality of life for their families or caregivers due to such longer hospital internment. This critical review of publications dealing with dependence on mechanical ventilation among children and adolescents aimed at making information organized in a systematic manner available in order to support discussion on the subject. It should be borne in mind that changes in epidemiological profile and growing technological access determine needs such as intensive therapy hospital beds and complex home care for chronic patients, which still have limits of supply and regulatory restrictions in the Brazilian public health system. | pt_BR |
| Affilliation | Fundação Oswaldo Cruz. Instituto Fernandes Figueira. Pós-Graduação em Saúde da Criança e da Mulher. Rio de Janeiro, RJ, Brasil. | pt_BR |
| Affilliation | Fundação Oswaldo Cruz. Instituto Fernandes Figueira. Pós-Graduação em Saúde da Criança e da Mulher. Rio de Janeiro, RJ, Brasil. | pt_BR |
| Affilliation | Fundação Oswaldo Cruz. Instituto Fernandes Figueira. Pós-Graduação em Saúde da Criança e da Mulher. Rio de Janeiro, RJ, Brasil. | pt_BR |
| Subject | Mechanical Ventilation | pt_BR |
| Subject | Biomedical Technology | pt_BR |
| Subject | Dependence on Technology | pt_BR |
| Subject | Chronic Mechanical Ventilation | pt_BR |
| DeCS | Assistência à Saúde | pt_BR |
| DeCS | Fatores de Tempo | pt_BR |
| DeCS | Respiração Artificial | pt_BR |
