| Author | Lima, Pedro Henrique Moreira | |
| Author | Jorge, Lorena Araújo Silva | |
| Author | Chaves Filho, Francisco César Monteiro | |
| Author | Costa, Renata Torreão Viana de Melo | |
| Author | Monteiro, André Jalles | |
| Author | Ribeiro, Thyciana Rodrigues | |
| Author | Meyer, Anya Pimentel Gomes Fernandes Vieira | |
| Author | Silva, Sara Maria | |
| Author | Pessoa, André Luiz Santos | |
| Author | Ribeiro, Erlane Marques | |
| Author | Fonteles, Cristiane Sá Roriz | |
| Access date | 2025-03-06T18:37:34Z | |
| Available date | 2025-03-06T18:37:34Z | |
| Document date | 2025 | |
| Citation | LIMA, Pedro Henrique Moreira et al. Perception of Quality of Life by Primary Caregivers of Children with Congenital Zika Syndrome: a Cross-Sectional Study. Maternal and Child Health Journal, v. 29, n. 1, p. 1-13, 1 Jan. 2025. | en_US |
| ISSN | 1092-7875 | en_US |
| URI | https://www.arca.fiocruz.br/handle/icict/68807 | |
| Language | por | en_US |
| Publisher | Springer | en_US |
| Rights | open access | en_US |
| Title | Perception of Quality of Life by Primary Caregivers of Children with Congenital Zika Syndrome: a Cross-Sectional Study | en_US |
| Type | Article | en_US |
| Abstract | Objective: The study aimed to evaluate the quality of life (QoL) of caregivers of children diagnosed with CZS and to assess the association of findings with socioeconomic and CZS-associated variables.
Methods: This was a cross-sectional, quantitative study, carried out over three days of multidisciplinary care for patients with CZS. Sixty-four participants underwent a quality of life assessment using the World Health Organization Quality of Life questionnaire (WHOQOL-BREF) in Portuguese.
Results: Both groups of caregivers attributed regular scores for Global QoL, and all WHOQOL-BREF domains. Among caregivers of children with CZS, QoL correlated with three of the four WHOQOL-BREF domains (psychological health: rho = 0.49, p < 0.001; social relationships: rho = 0.28, p < 0.023; and environment: rho = 0.11, p < 0.006), while general health perception correlated with three other domains (physical health: rho = 0.49, p < 0.001; psychological health: rho = 0.31, p < 0.012; and social relationships: rho = 0.30, p < 0.016). The environment domain was associated with the level of education in this population (p < 0.001). Macular scarring and focal pigmentary retinal mottling were significantly associated with the physical environment (p = 0.039), negative feelings (p = 0.035), support and social aid (p = 0.020).
Conclusion: The present study demonstrates that the WHOQOL-BREF is an effective method to evaluate the general perception of QoL among caregivers of children with CZS. Our results also suggest that caregivers of children with CZS do not experience a reduced quality of life compared to caregivers of typically developing children. | en_US |
| Affilliation | Universidade Federal do Ceará. Programa de Pós-Graduação em Odontologia. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade Federal do Ceará. Departamento de Odontologia Clínica. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade Federal do Ceará. Programa de Pós-Graduação em Odontologia. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade Federal do Ceará. Programa de Pós-Graduação em Odontologia. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade Federal do Ceará. Departamento de Estatística e Matemática Aplicada. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade Federal do Ceará. Programa de Pós-Graduação em Odontologia. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Fundação Oswaldo Cruz. Fiocruz Ceará. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade Federal do Ceará. Programa de Pós-Graduação em Odontologia. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Hospital Infantil Albert Sabin. Fortaleza, FOR, Brasil. Universidade Federal do Ceará. Departamento de Saúde da Mulher, da Criança e do Adolescente. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Hospital Infantil Albert Sabin. Fortaleza, FOR, Brasil. | en_US |
| Affilliation | Universidade de Houston. Centro de Ciências da Saúde. Faculdade de Odontologia. Departamento de Odontopediatria. Texas, TX, Estados Unidos. | en_US |
| Subject | Caregivers | en_US |
| Subject | Craniofacial abnormalities | en_US |
| Subject | Microcephaly | en_US |
| Subject | Quality of life | en_US |
| Subject | Zika virus | en_US |
| e-ISSN | 1573-6628 | |
